Consultation on the United Kingdom Plan For Rare Disease Northern Ireland

The Cavan Tommy Hoey Trust is shocked by the lack of responses to the United Kingdom Rare Disease Plan Northern Ireland Parties had the chance to give their views on how they see Rare Disease in Northern Ireland they failed the people in No

rthern Ireland to make a case for younger children of Northern Ireland who have rare diseases and rare cancers, they failed to make a strong case for Northern Ireland.
The Party who has shown true grit for the Children Of Northern Ireland was the Belfast Alliance Party they did not fail to take up the offer to make a case for our children.
The Cavan Tommy Trust view is well known that we need a center of excellence in Northern Ireland like the rest of the United Kingdom and of European standard, this is what our MLA's are sitting in Stormont to do make decisions for the people of Northern Ireland and to work to get its citizens the best Health Care like the rest of Europe.
Northern Irland has and is falling short in health care of rare diseases and this is transferring the burden of costs to the families of children who have a rare disease to take their children to other countries for treatment and Diagnosis.
The Cavan Tommy Hoey Trust will fight for the Children of Northern Ireland until they are getting the same treatment as the rest of Europe and the United Kingdom.
The Trust would also thank the other Northern Ireland Groups who took time to reply to the Consultation Northern Ireland Parties need to wake up to what our people need in Health Jobs and Investment in our young people.
https://www.wp.dh.gov.uk/publications/files/2012/11/Consultation-on-the-United-Kingdom-Plan-for-Rare
www.wp.dh.gov.uk