Rare Disease Day Comes To Bangor Co Down Northern Ireland On The 28th April 2012 - Children's Hospital Los Angeles - Zimbio

The Cavan Tommy Hoey Trust (Ireland) will be taking its Rare Disease Day Road Show To Bangor Co Down Northern Ireland on the 28th April 2012 the Trust holds its rare disease day every year for the past four years but it has decided to also hold road shows to raise awearness across Northern Ireland the trust feels that awearness needs to get out into the public to help the People of Northern Ireland know and to understand about Rare Diseases and the effects it has on the family unit.

The Trust feels that Rare Disease is such an important issue for young mothers and for familys it feels Northern Ireland is lacking in the resourses to Diagnose many of the very rare diseases like Histiocytosis or XLP the need for a childrens hospital of exelence in Northern Ireland is vital to make the job of our doctors spot the very rare diseases like Histiocytosis and XLP that mimick other illnes is vital and urgent, the need for our doctors to be trained in how to sopt diseases that do mimick other illness is vital in the fight against rare disease.

The Trust feels to hold road shows is vital to get the message out to the public to enable young mothers to be awear of how theses disease look like and to spot just what to look out for,Northern Ireland has never held an event like Rare Disease Road Show and we hope it proves to be worthwhile and also hope it will put pressure on the Northern Ireland Health Minister to build a new Childrens Hospital of Exelence in Northern Ireland to deal with rare conditions and genetic diseases.